The Seven Minutes I Did Not Have
I used to think the pressure of a busy clinic was a scheduling problem. Then a patient waited until I had my hand on the door handle to ask the only question she had come to ask.
Illness, told from both sides
Doctors writing about the moments that changed how they practise, and patients writing about what it was actually like. Same conditions, two vantage points — follow a diagnosis and read both.
12 stories · 6 from 6 doctors · 6 from 6 patients
Showing 12 stories.
I used to think the pressure of a busy clinic was a scheduling problem. Then a patient waited until I had my hand on the door handle to ask the only question she had come to ask.
I said yes to the mastectomy in about four seconds. It was the obvious decision and I have never regretted it. What nobody prepared me for was missing something I had actively asked them to take.
Door to balloon, fifty-one minutes. A textbook result and I was pleased with it. Then he came back to clinic six weeks later, physically well and quietly falling apart, and I realised I had treated an artery and discharged a person.
Everyone kept telling me how lucky I had been and how well it had gone. They were right. I still spent a month and a half convinced that every heartbeat I could feel was the beginning of the end.
We were managing her daughter beautifully. It took eleven days for anyone to work out that she had not been home in that time, and that the person we were about to discharge a baby to was closer to collapse than the baby was.
She was born at twenty-nine weeks and for three months other people knew how to look after her and I did not. The kindest thing anyone did was to teach me one small job that was only mine.
His bloods were excellent. His fluid balance was textbook. He was also about to lose the job he had held for nineteen years, and I had never once asked him what our schedule was doing to his week.
It is in my notes, I have seen it: "poorly compliant with fluid restriction". Four years of doing something impossibly hard imperfectly, summarised as a character flaw. Here is what that word does.
Seventeen years, four consultants, roughly forty thousand injections. The insulin I can do in my sleep. What I have never got used to is being spoken to as though my blood sugar is a report card on my character.
Four years, three rounds, one phone call each time on a Tuesday morning. What I remember most clearly is not the failures. It is the nurse who told me she was sorry, and meant it, and then said my name.
The note read: "denies low mood, no active plans, appropriate to discharge from our care." Every word of that was accurate. I had asked closed questions in a shared bay for eleven minutes and recorded the answers as a finding.
Our goal was independent transfers and modified diet. His goal was to say her name. It took us five weeks to find that out, and it was the only thing that made him work.